- CureHD Foundation -
Dedicated to funding a cure for Huntington's Disease.


Robert Bishop
Introduction
HD family tree
Why I do this
Family photos

What is HD?
Definition
The HD secret
How many have HD
The cruelest illness

The HD nightmare
My experience
Other experiences

HD research
Hope for a cure
North America

How can I help?
Make a donation
Contact the media
Ask legislators...

News & events
Articles & stories
I need your help

Contact info
CureHD Foundation
CureHD sponsors
HD web sites
Other info

Content 1999-2009
CureHD Foundation
All Rights Reserved.

www.curehd.org

HD research efforts in North America...
The Hereditary Disease Foundation (or HDF) funds several HD related research programs including the "Cure HD Initiative." HDF was responsible for funding the research team that found the HD gene! All individual donations sent to HDF are used for HD research (i.e., non-research related expenses are not taken from general donations).

Another national organization, the Huntington's Disease Society of America (or HDSA), was started by the widow of Woody Guthrie (the folk singer who died of complications due to HD). HDSA has created a coalition of top medical scientists from around the world in an effort to break down the walls of "secrecy" in traditional medical research (a faster path to find a cure). The Coalition for the Cure gets together semiannually to share information about what each researcher is doing. All individual donations sent to HDSA should be earmarked for HD research only (since HDSA also funds care and keeping initiatives as well as administrative costs from general donations).